KLS Support UK - Helping families affected by Kleine-Levin Syndrome


This NHS link has all the information on the various benefits available with links to the claim forms etc.

We have a number of links on our website to help you too, just scroll down to the section 'Benefits information and help for families and children'.

It has been brought to our attention that a child with KLS has been awarded Disability Living Allowance (DLA). Have you considered applying for your child or if you are severely affected by KLS for yourself?

Mumsnet offer excellent advice on completing the form when claiming for your child.

From Monday 10th June it will only be possible to make a new claim for PIP rather than DLA, unless you are claiming for a child under 16 years of age. This is already the case in pilot areas of the north of England.

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All children and young people with special educational needs or disabilities (SEND) should be able to reach their full potential in school. They should also be supported to make a successful transition into adulthood, whether into employment, further or higher education or training – Department for Education