Archive

BSS Conference (UK)

KLS Support UK took a stand at the British Sleep Society Conference which took place at the University of Cambridge on 25th - 27th September 2011.

The stand was manned by Adele Clarke, Caron Krieger, James Krieger and Rick Ball. Unfortunately Annette Robinson who was planning to attend was unable to do so. It was KLS Support UK's first time exhibiting at a medical conference. The aim was to speak to consultants, doctors, psychiatrists, healthcare workers and sleep laboratory technicians from all over the country. There was a great deal of interest and information leaflets were distributed, which had contact details for the KLS Foundation and KLS Support UK. The leaflets will be used by the medical professionals to help newly diagnosed patients and to raise awareness. The stand included an information banner and showed Louisa Ball's video.

The stand was visited by Professor Emmanuel Mignot who is conducting the research into Kleine-Levin Syndrome at Stanford University. He spoke about KLS during his talk on narcolepsy at the conference. He also met with Professor Paul Gringras who has very kindly agreed to become KLS Support UK's medical adviser. Image link below.

https://docs.google.com/document/d/16nZQC5e8X-g0-pqhROThe6DijNYsMJyHP5EYwWtIqYY/edit?hl=en_GB

KLS Foundation Conference (USA)

The KLS Foundation's First International Conference for KLS has now taken place. DVDs of the Conference are available from the KLS Foundation for a donation to the Foundation of at least $120, about £76. We suggest you ask to borrow them from us since they have limited information content for those who could not attend the conference.

http://klsfoundation.org/kleine/levin/news_article/how_do_i_get_a_video_of_the_kls_conference

KLS SUPPORT UK FAMILY DAY

Sunday 20 September 2015
2-5pm
Haslewey Community Centre
Lion Green
Haslemere
Surrey
GU27 1LD

You are invited to join us to chat with other families with KLS in an informal setting. On this occasion there will be no doctors speaking but there will be an informal Q and A and an update on the KLS Foundation Conference earlier this summer.

IPSA Conference

The International Paediatric Sleep Association (IPSA) held its biennial Congress for the first time in the UK. It was held in Manchester on 6th and 7th December 2012 for health professionals. Caron and Adele manned a stand for KLS Support UK at this Congress in order to raise awareness of Kleine-Levin Syndrome. They reached a large number of health professionals and distributed the leaflet when appropriate. Please read newsletter 2, Dec 2012 for more information.

KLS Support UK Meeting 2016

We invite all families affected by Kleine-Levin Syndrome to join us at KLS Support UK's fifth annual meeting, which will take place on Sunday, September 18 at 1:30 - 4:30 PM .

Dr Guy Lechsziner, consultant neurologist and sleep disorder specialist and one of our medical advisers will talk about KLS and answer your questions.

We hope to be joined by a psychologist who has experience of supporting patients and families affected by adolescent illness.

There will also be lots of time to meet other families over tea and to share experiences.

To register and for me information, click here for our Eventbrite page. There is no charge for the meeting.

We look forward to seeing you there.
Best wishes

KLS Support UK